Next Ups!

Both boys won their football on Saturday!

Both of them made key blocks and plays during the game, pretty awesome, you can feel the mood around them lighten and be more happy and outgoing when the game is in the win column. Keep is up guys!

This week's happenings include no change on my medical condition except for soreness in the leg joints. A little bit of feeling like i have been frozen in this in between place, between recovering and still being treated. and no communication from my medical contacts, i don't need constant communication, but c'mon, it's me after all... :-)

I have my follow up MRI on Tuesday, this will be the biggie. Gonna give Med Onc Dr an assessment of the current status of tumor. He has mentioned several times that there is an effect he refers to as pseudo-progression, this is where in the MRI has, apparently, a swollen tumor attached. But in reality what it is is is an aggravated area of the brain and it is swollen. The plan if this is seen is to A) surgically examine and remove or B) Use my assessment to determine if it is getting worse or not.

My assessment is not going to of much use, the only i feel is TIRED. If tiredness is symptom of anything then thats the issue, it is overwhelming. I sleep for an hour or so at a time, wake up for an hour or so then back at it, 24 hours a day. Thank you for all your sleep suggestions but getting to sleep is not the problem, staying asleep is. I have a cure in mind, and my, ahem, alternative physician is working on it for me, we'll see how it goes. 12 hours uninterrupted sleep would be just what i need, do it 4 or 5 days in a row,,,oh happy days.

So we are planning a trip to Disney before the next big Medical Event, (Chemo, RAD, Back to Work). After working on the details for a  week i have a new found respect for travel agents, sooo many details to look at. We are going to do the Disney hotel for a few days then rent a sailboat and stay out on the water over night and see the big fishes, hopefully. Little R is scared of the sharks and flying, i remember being afraid of flying. M seems to take it it all in stride, of course he does, he is so grown up at 12.  He has flown before (at 3, i think) so he is the expert he will share all his flying advice with his brother and let him know that the shark-week documentary we watched was actually a movie disguised as a news show, sometimes the dynamic between them is stunning in its brotherly-ness, if ya know what i mean....

Intermission!

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So we are facing some changes on the homefront as far as people helping out go. I don't want to go into too many causal details, but let me just say it's me, maybe? Not really sure it gets complicated and secondary issues come into play, but i do have a tumor so i can take it and it's like teflon, rolls right off. And I'm coolio with it. Shahrazad has found another place to live right down the road less than a mile away so she will be available in a pinch like she has been from day one (thank you!).  I think in this case it comes down to familiarity  breeds familiarity to coin a phrase. Over the last few weeks tensions have been slowly growing over different things i have mentioned, in a perfect world we could reset everything to 0 after conversations but nothing works like that.

The boys will be missed greatly, they are wonderful kids to have around not just for my kids but they are genuinely good kids to have around. i will mis their jokes and games. On a daily (ok, maybe not daily) basis lol.

Everything will be fine, sisters will heal, boys will see how the healing is done, and everyone will be wiser for it.

Tadaa!

Have a Great Sunday!